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Links Time Capsule:
Parents Page
On this page
are resources
discovered when we were more involved in preemie related matters.
We've weeded out the dead links and found that these resources
continue to exist, and to provide valuable information to those who
may need it.
Actually, we
forgot how great some of these resources are! Guess that
happens when your more focused on school work and scouting than
worrying that your kid started out as a preemie.
Parenting Resources
General Resource/Misc.
Parenthood.com -- with articles,
links and communities
Child Development Institute -- Online Information on
Child Development, Parenting, Child Psychology, Teenagers, Health, Safety and
Learning Disabilities including Attention Deficit Disorder and Dyslexia
Modern Stork -- includes
information on pregnancy, childbirth education, and parenting
CDC
Growth Charts: United States, Health and Human Services Secretary
Donna E. Shalala has released new pediatric growth charts that will be used by
health professionals in tracking the physical growth of the 82 million
infants, children, and adolescents in the United States
The
You Can Handle Them All, site with suggestions on disciplining children
Baby
Place, the starting point for parents for
information on pregnancy, birth, and babies
Sesame Workshop, Family and kid activities
from the folks who bring you Sesame Street
Parents seem to swear by the Potty
Training Video for Children. You won't believe some of the songs (Super Duper
Pooper?)
Institute for
Family-Centered Care: Welcome Home
Babies Today Online - Parenting and baby-related
resources for parents, by parents
Consumer Product Safety
Commission Press Releases
Mom's Life--The Place For Parents To Meet In
Cyberspace!
Parenting and Pregnancy articles &
resources at TheParentSite!
ParentsPlace.Com Home Page.
This place has been around so long and so much to offer, I can't believe it sat here with
such a plain link. Visit Parents Place for an amazing amount of resources on all
areas of parenting--including some resources specific to preemies. A first rate site
Parents.com, From
G+J USA, publishers of Parents, Child, Family Circle and McCall's
Kids Space is a fun site for kids updated
daily
CompuServe's Family
Services Forum is on the web so that it can be accessible for those with Internet
Browsers. A person doesn't have to be a CompuServe member to read the messages on the
message board and see and download files. The message board includes various
threads, including "Pregnancy/Birth" and "Newborns/Infants" that may
be of interest.
Vaccine Information & Awareness, empowers
parents to question, challenge, investigate, research and become more informed and aware
about vaccine risks and dangers that exist . (the description is taken from the site)
The Virtual Hospital Home Page, a project of the
Electric Differential Multimedia Laboratory, University of Iowa College of Medicine. It is
a continuously updated digital health sciences library stored on computers and available
over high speed networks 24 hours a day
Welcome to the Labor of Love, a new
resource on pregnancy and parenting. Includes a specialized search engine.
Parenting
Babies and Toddlers, another great parenting site
101 Activities To Do
With Your Toddler
Welcome to Net-mom, Jean Armour Polly's
page with information on her book "The Internet Kids Yellow Pages"
Family Village, a (self described)
global community that integrates information, resources, and communication opportunities
on the Internet for persons with mental retardation and other disabilities, their
families, and those that provide them services and supports.
The WonderWise Parent home page
is a (self described) place for parents and professionals who work with them to learn
about parent-child relationships. It appears to have commercial and non-commercial
content.
The homepage of The Baby Forum,
a newsletter for parents and their children. "The Baby Forum" hopes to promote
whole foods, organic products, conservation, and recycling (per the sites self
description).
Parent Education Ring - was
created on February 4, 1997 by Charles A. Smith, author of The WonderWise Parent Web Site.
"The Parent Education Ring" (PER) is a gathering of websites that have a common
purpose of providing information and resources for parents and professionals who work with
them.
POSITIVE PARENTING (ON-LINE!)
Misc
Kids, Features several pregnancy related and child rearing FAQ's. An excellent
resource.
Partnership For A Drug-Free America
NICHD - The National
Institute of Child Health and Human Development Official Home Page
Especially for New Parents
Tracy's Baby Links,
billed as the place for all things baby
Lactation Education Resources, the
self described source for lactation management education for professionals
Baby-Go-To-Sleep tapes are
available on the internet and may be just what you need! The site also has parenting
links
Welcome to Lact-Aid International, Inc., a
commercial site featuring their breast feeding supplementer as well as breast feeding
guidance for mothers.
Oregon Nannies Home Page, if your looking
for a nanny, or want to be a nanny, you might start here
FUSSY BABIES
General Medical
PediatricLinx,
News in Pediatrics for Doctors from Current Medical Journals
Medscape
Pediatrics "offers specialists, primary care physicians, and other
health professionals the Web's most robust and integrated multi-specialty
medical information and education tool"
Emory Pediatrics - Developmental
Continuity Program , "The mission of the Developmental Continuity Program
is to provide multidisciplinary neurodevelopmental evaluation and intervention
services to infants and children identified as “at-risk” for
neurodevelopmental disabilities
The Hospital For Sick Children,
The Hospital for Sick Children -- affectionately called Sick Kids -- is one
of the largest pediatric academic health science centers in the world, with
an international reputation for excellence in health care, research, and teaching.
Affiliated with the University of Toronto and located in Toronto, Canada
PEDIATRICS electronic pages, is the World Wide
Web extension of the journal Pediatrics, the official journal of American Academy
of Pediatrics. This site contains exclusive new research articles covering advances in
pediatric medicine
Medical Breakthroughs reported by Ivanhoe Broadcast
News, Inc. I haven't searched for preemie information here, but it looks to be
of interest.
Welcome to PubMed,
NLM's search service to access the 9 million citations in MEDLINE and Pre-MEDLINE (with
links to participating on-line journals), and other related databases.
Institute for
Family-Centered Care Homepage, this site shares information, facilitates
problem-solving, and promotes dialogue among individuals and organization working toward
family-centered care (self described).
InteliHealth, "The Trusted
Source" -- editors "consumerize" health information to make it
accessible to the widest possible audience
KidSource OnLine Welcome Page,
the (self described) source for in depth and timely education and healthcare information
that will make a difference in the lives of parents and their children.
PEDIATRIC NEUROSURGERY
HOME PAGE, is self described as being dedicated to providing families with information
regarding various aspects of the field of pediatric neurosurgery.
The Harriet Lane Links
(formerly Pediatric Points of Interest) provide an edited collection of
pediatric resources on the World Wide Web. Maintained and edited by
physicians at the Johns Hopkins University, this site attempts to catalog,
review and score existing links to pediatric information on the Internet. (updated
10/15/00)
Pediatrics, the official journal of American
Academy of Pediatrics
Homepage of the American Academy of Pediatrics
Disabilities
National Center for Learning Disabilities -
information on
dyslexia, special education, ADD, ADHD
LD
Online, the interactive guide to learning disabilities for parents,
teachers and children
The Lilli Nielsen Little Room
"The purpose of the 'Little Room' is to facilitate blind children's achievement of
spatial relations and reaching behavior, but it can also be of considerable help for
sighted low functioning children."
NICHCY-
Parenting A Child With Special Needs - You Are Not Alone
Internet Resources for Special Children (IRSC),
dedicated to communicating information relating to the needs of children with disABILITIES
on a global basis.
Condition Specific
The Tomatis Method site
features information on their program which they
say has helped many people with:
Attention Deficit Disorders (ADD), Attention Deficit, Hyperactivity Disorders
(ADHD), Learning delays, Autism, Dyslexia, Balance and Coordination Problems,
Sensory integration and motor skill difficulties, Asperger's Syndrome,
Pervasive Development Disorder (PDD), and Down's Syndrome.
(added November 11, 2001)
Sensory Integration
International, self described as "a non-profit, tax-exempt corporation
concerned with the impact of sensory integrative problems on people's lives.
We bring together professionals, individuals, families, and researchers who
want to know more about sensory integration."
(added November 11, 2001)
Sensory Integration
Dysfunction, definitions, articles, links and other resources.
(added November 11, 2001)
About ADD -- Attention
Deficit Disorder -- links, articles, and resources.
(added November 11, 2001)
CPParent HomePage, from the site:
"CPParent is a LISTSERV mailing list for discussions of issues relating to the parenting of children afflicted by Cerebral Palsy (CP). Children, as well as parents, are invited to join in the discussion. Discussion topics are relatively loose...anything that can help families affected by CP is welcome."
Reflux Homepage, A page for the Pediatric /
Adolescent Gastroesophageal Reflux Association (PAGER). Self described as a non-profit
organization that provides information and support to parents, patients and doctors.
Includes a discussion area for adults
PDHeart, Congenital Heart Defect
Support Group a forum for families of children with Congenital Heart Defects
(CHD) to share information and experiences, and to provide support
Krabbes Disease Home Page
ASHA:
Early Identification of Speech-Language Delays
Apraxia Kids Home
Page; apraxia of speech resource
NOAH's Home Page, (National
Organization for Albinism and Hypopigmentaion) a resource for parents of children with
Albino tendencies
The Hanen Early Language Program
Cure Autism Now, A new organization founded
by parents dedicated to finding effective biological treatments and a cure for autism.
Deaf Web Ring, A ring with
deaf related web sites in WWW done by or for the deaf.
Children and Adults with Attention Deficit Disorder,
(CHADD) is a nonprofit parent-based organization formed to better the lives of
individuals with attention deficit disorders and those who care for them
AAN/MA--Allergy and Asthma
Network, Mothers of Asthmatics, Inc. AAN-MA is the nationwide
community-based nonprofit health organization dedicated to eliminating
morbidity and mortality due to asthma and allergies through education,
advocacy, community outreach, and research
Other Special Needs
The Sibling Support Project
, a
national program dedicated to the interests of brothers and sisters of people with special
health and developmental needs
Special Child Magazine for Parents of Children
with Disabilities
Internet Resources for Special Children (IRSC), the
IRSC web site is dedicated to communicating information relating to the needs of children
with disABILITIES on a global basis
Comeunity Support for Unique Families - adoption
& special needs, lots of good stuff here, including information on subscribing to
several listserve e-mail based support groups
[Hallway
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Pregnancy Links
The Visible Embryo, Self described as "a comprehensive resource of information on human development from conception to birth, designed for both medical student and interested lay people." Very
cool.
BirthPsychology, from the site:
"You've found the path to the treasures of birth psychology. In these pages you'll be
able to explore the many mental and emotional dimensions of pregnancy and birth in
everything from scholarly articles to personal stories and late-breaking
headlines."
The Labor of Love is self described as "a
great place to discuss pregnancy parenting issues". A pregnancy and parenting
resource -- looks like lots of good stuff here
MIDIRS home page, Midwives Information and Resource
Service. The homepage of a quarterly publication
BabyZone! self described as "Your destination
for pregnancy, childbirth, infertility and Babies" looks like a fun site with lots of
resources for those who are expecting (hey, why are you at a preemie site then!
;-)
A guide with resources for those dealing with Infertility
at About.com
BabyCenter, "With You Every Step of the
Way" a feature for parents with lots of great resources--check it out
Beaumont Home Page--Both Thomas and Alyssa were
born at Royal Oak's William Beaumont Hospital. Tommy was in their NICU from July-November
of 1994
Fertilitext - Fertility & Infertility
Information, information about fertility and reproductive problems.
StorkNet, on-line resources for parents-to-be
and new parents
Pregnancy Calendar, Fertility Information, Baby Name Finder -
ParentsPlace.com
Sidelines is a network of support
groups across the country for women with complicated pregnancies and their families. A
pregnancy is termed "high-risk" or "complicated" when the life or
health of the mother or baby may be at risk.
Pregnancy --
signs of pregnancy, pregnancy calendar, baby names -- Pregnancy Health
Center on Yahoo! Health
Obstetric
ultrasound -- a comprehensive guide to ultrasound scans in pregnancy
Online Birth
Center -- Midwifery, Pregnancy and Birth
Related Information
Pregnancy - Reproduction and Health Education,
"Welcome to Childbirth.org. Pregnancy is a very special time in a person's
life. Educating yourselves to be good consumers, knowing your options, and
how to provide yourselves with the best possible care are essential to a
healthy pregnancy. Enjoy the many links of educational, informational, and
personal nature."
Support after a Loss
Angel Babies Forever Loved, a page dedicated to all who have lost an infant from miscarriage, stillbirth, neonatal loss, or SIDS. A great resource -- well done
The Compassionate Friends, The mission of The Compassionate Friends is to assist families in the positive resolution of grief following the death of a child and to provide information to help others be supportive
Hannah's Prayer Pregnancy / Infant Loss
Resources is dedicated to Noel Alexis Saake ("from my womb into the loving arms
of Jesus, December 27, 1994") and all the children who have left this earth before
their parents were ready to let them go
GriefNet: bereavement, grief, death and dying resources
GriefNet is a system that can connect you with a variety of resources related to death,
dying, bereavement, and major emotional and physical losses. They offer retrievable
information in this gopher/web server and have interactive communication facilities --
discussion and support groups -- all
for bereaved persons and those working with the bereaved, both professional and lay
persons. These are run through their mailing
lists.
(Paraphrased from their self description)
Empty Arms Web Ring,
A Web ring of pages created by "parents who are grieving the loss of a child as a way
for us to share our children with each other and get resources and help along this path
called grief."
Infant Death and Pregnancy
Loss, This page is dedicated to providing timely information for parents who have lost
infant children before or at birth, or shortly after
A Place To Remember Home Page, uplifting
support materials and resources for those who have been touched by a crisis in pregnancy
or the death of a baby. Includes a remembrance book for memorials
SPALS (Subsequent Pregnancy After a
Loss Support) is a (self described) warm and compassionate group of people who have
experienced the loss of a child due to miscarriage, selective termination, stillbirth,
neonatal death, sudden infant death, or accidental death
Toni's Angel Pages, in Support of
Pregnancy - A page to help move beyond a pregnancy loss
Hygeia...An Online Journal for Pregnancy and
Neonatal Loss
SANDS, Stillbirth and Neonatal Death Support
Group
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Preemie Links
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